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The Power of Disability: 10 Lessons for Surviving, Thriving, and Changing the World (Paperback)
"This book reminds us of what we have in common: the power to create a good life for ourselves and for others, no matter what the world has in store for us." --Michael J. Fox
This book reveals that people with disabilities are the invisible force that has shaped history. They have been instrumental in the growth of freedom and birth of democracy. They have produced heavenly music and exquisite works of art. They have unveiled the scientific secrets of the universe. They are among our most popular comedians, poets, and storytellers. And at 1.2 billion, they are also the largest minority group in the world.
Al Etmanski offers ten lessons we can all learn from people with disabilities, illustrated with short, funny, inspiring, and thought-provoking stories of one hundred individuals from twenty countries. Some are familiar, like Michael J. Fox, Greta Thunberg, Stephen Hawking, Helen Keller, Stevie Wonder, and Temple Grandin. Others deserve to be, like Evelyn Glennie, a virtuoso percussionist who is deaf--her mission is to teach the world to listen to improve communication and social cohesion. Or Aaron Philip, who has revolutionized the runway as the first disabled, trans woman of color to become a professional model. The time has come to recognize people with disabilities for who they really are: authoritative sources on creativity, love, sexuality, resistance, dealing with adversity, and living a good life.
About the Author
Al Etmanski is a community organizer, social entrepreneur, and author. He became a parent activist in the disability movement thanks to his daughter Liz, an artist, actress, and spoken-word poet who thinks her Down syndrome is "rad." He is a member of the prestigious Ashoka global fellowship of social entrepreneurs and co-founded Planned Lifetime Advocacy Network, which helps parents provide a secure future for their sons and daughters with disabilities. He has received the Order of Canada and Order of British Columbia for his activism.
“Al Etmanski upends the usual self-help formula, as well, but he does so by telling the stories of a largely ‘untapped and underappreciated source, people in the disability community.’ Etmanski—a disability activist, community organizer, social entrepreneur, and author—explains early on that his new book isn’t really about disability, but about life. And he has found that the disability community and movement that welcomed him after he welcomed a daughter with down syndrome into the world offered some of life’s best lessons. He believes that:
The time has come to recognize people with disabilities for who they really are: authoritative sources on creativity, resilience, love, resistance, dealing with adversity, and living a good life.
This book does that. In sharing the stories of an incredibly diverse set of individuals, he shows how independence is only possible through our interdependence, how unity comes from embracing our differences, how opportunity is extended through a nurturing environment and expanded justice. He also tells stories of how opportunity, inventiveness, ingenuity, and clarity can arise out of adversity—while never glossing over the struggles that people face or the need to address them more collectively and more fully as a society. Perhaps it won’t surprise you that two of our most transformational presidents, individuals who led the nation through some of its most challenging chapters, were individuals with a disability—Lincoln with clinical depression and FDR with polio. The ‘advantages that people with disability offer,’ Etmanski writes, ‘are the perfect remedy for the troubled times we live in,’ and after what I’ve read so far, I couldn’t agree more.” —Dylan Schleicher, Porchlight Book Company
“Hopefully the universal lessons in this book will not only empower all of us to trampoline to our highest potential but also move the global disability rights movement to achieve the success it fully deserves—so we can all live in a more just and equitable world.” —Susan Sygall, disability activist and MacArthur Fellow
“Etmanski engages every reader, whether new to the world of disability or an old hand, with thoughtful insights on the value of difference. This book made me laugh, made me cry, made me proud.” —Yazmine Laroche, former Chair, Muscular Dystrophy Canada
“Etmanski mines rich wisdom from the disability world and makes it accessible to a general audience. In a world increasingly divided and polarized, this book will unite, while changing the perception of disability from illness needing only charity to a normal human condition needing only opportunity.” —Carol Glazer, President, National Organization on Disability
“In a world defined by accelerating change and interconnection, those who recognize their differences and give themselves permission to make a difference have a powerful advantage. The stories in this book illustrate how people with disabilities are seizing their power. They will help all of us see and seize ours.” —Bill Drayton, CEO, Ashoka